Senior Manager, Knowledge Exchange and Community Information – ALS Society of Canada

The ALS Society of Canada (ALS Canada) is searching for a Senior Manager, Knowledge Exchange and Community Information to join our award-winning team. As the successful candidate, you will be responsible for delivering on our strategic priority to support people affected by ALS in making informed decisions. The success of this area will contribute to positioning ALS Canada as the trusted resource for ALS information within Canada.

Role Description

Reporting to the VP Marketing and Stakeholder Relations the Senior Manager, Knowledge Exchange and Community Information encompasses both the development of an online resource of information for people to access on their terms, as well as programming to engage and empower the community. The incumbent will take the lead on developing an online hub that supports the information needs of the Canadian ALS community. This includes identifying resourcing supports to bring that vision to life, and leading the execution of strategic deliverables, including developing and curating content about the realities of living with ALS topics such as the current status of clinical trials, therapy development and research.

The Senior Manager, Knowledge Exchange and Community Information is a new role at the ALS Society of Canada responsible for delivering on our strategic priority to support people affected by ALS in making informed decisions. The success of this area will contribute to positioning ALS Canada as the trusted resource for ALS information within Canada.

You are a creative self-starter who is motivated by the opportunity to build something new and meaningful for the Canadian ALS community. You understand the value of knowledge mobilization and have an interest in disseminating information about research and care in an effective and meaningful way to a variety of audiences and through a multiple medium. With a keen awareness of how your work connects with other areas of the organization and community, you are able to effectively identify and manage external resources to produce quality products and content within a limited budget. Flexibility, comfort in an evolving role with few precedents, and savvy in navigating a complex, multi-stakeholder environment are traits that will enable you to be successful in this role. You are able to admirably balance a high volume of work with high-quality output. Bilingualism (English and French) is an asset.

Work Environment

Though ALS Canada is currently working remotely, this is a hybrid role and involves in-person work where required.

What You Will Do:

Platform and content development and ongoing management

  • Working with the Web Projects Specialist and external website developers, lead the development and launch of a new online information hub that positions ALS Canada as the go-to resource for the Canadian ALS community of people and families affected by the disease.
  • Identify, curate, develop, and publish content about ALS care and research that responds to the needs of the ALS community, with a strong focus on audience needs and end user experience.
  • Ongoing creation and revision of content about what amyotrophic lateral sclerosis is and key statistics about the disease.
  • Work with the Strategic Communications, Marketing, and Community Services teams to disseminate and promote the content being produced via multiple channels (e.g. e-newsletters, social media organic and paid content, earned media, webinars, etc.)

Community Ambassadors program

  • Oversee the annual Canadian ALS Learning Institute from promotion through to delivery and evaluation.
  • Lead the ALS Canada Community Ambassadors program, collaborating with colleagues from research and stakeholder relations to develop monthly meeting agendas and identify and coordinate opportunities for ongoing engagement.
  • Participate as an observer in monthly meetings of the patient education and advocacy committee (PEACe) of the Northeast ALS Consortium as a bridge to the Community Ambassadors program.

Align and effectively manage human and financial resources

  • Manage external vendor relationships including website developers, videographers, writers, graphic designers, etc.
  • Develop and track annual budget, ensuring good fiscal management and wise use of donor dollars.
  • Refine and track annual leading and lagging performance indicators.


  • Contribute to, champion, and comply with brand and style guidelines to ensure ALS Canada is positioned in a clear and consistent way in all internal and external initiatives.
  • Serve as an ambassador for the organization and attend events as required.
  • Other duties as required.

What we are looking for:

  • Five to seven years progressive experience in journalism, communications, adult-education resource development or a related field.
  • Post-secondary education in journalism, communications, or a related field.
  • Demonstrated skills in content development and production, as well as project management.
  • Excellent written and verbal command of the English language with a strong sense of tone needed for various audiences.
  • Self-starter and leader of innovation with a passion for new and emerging trends in digital communications and understanding of how they can be applied to benefit the organization.
  • Exceptional communications skills with the ability to liaise with the ALS community effectively and sensitively.
  • High degree of judgment, political sensitivity and creative problem-solving skills including negotiation and conflict resolution skills.
  • Positive, results oriented with the interpersonal skills and integrity that inspire trust and support effective collaboration.
  • Bilingualism (English and French) an asset.
  • A keen interest in the organization’s mission and mandate and desire to help make a difference to people and families living with ALS.
  • Highly motivated, resourceful, and driven to succeed while providing creative solutions to challenges.
  • Strong strategic and analytical thinking, problem-solving, project management, organizational, consultative, facilitation, consensus-building, and conflict resolution skills.
  • Knowledge and application of virtual meeting software, Microsoft Teams, Office 365 and web-based tools for project management, time tracking, etc.
  • Strong team player with excellent communications skills and ability to lead and work within a team setting to accomplish shared goals.
  • Flexibility and adaptability to seize new opportunities and reprioritize to balance urgent and important deliverables.
  • Commitment to ALS Canada’s core values and modelling them to others.

Special Considerations

ALS Canada requires all staff members to be fully vaccinated, unless they are unable for protected reasons under the Human Rights code. Staff will be asked to sign our Vaccine Policy and submit a copy of their vaccination certificate.

Apply Today!

Submit a cover letter and resume in pdf format to Please be sure to indicate the job title in the email subject. Applications will be reviewed on an ongoing basis until the position is filled. ALS Canada would like to thank all applicants for their interest; however only those selected for an interview will be contacted.

Why join ALS Canada?

A charitable organization that lives its values of accountability, collaboration, compassion, integrity, resiliency and respect, ALS Canada works with the ALS community to improve the lives of people affected by amyotrophic lateral sclerosis through support, advocacy and investment in research for a future without ALS. Fully funded by donors, we were fortunate to benefit from the generosity of Canadians during the Ice Bucket Challenge of 2014 and are now focused on implementing our 2018 to 2023 strategic plan in support of the following long-term impacts: people affected by ALS receive the best possible standard of care; more treatments are available to improve quality of life and extend lifespan; and people are empowered to make informed decisions about ALS.

Our world is challenging. The people we serve are dealing with a devastating illness. But in the midst of it, their resiliency and spirit is remarkable and moving. You will be touched by the community and will find a way to naturally and effectively engage.

ALS Canada is committed to accommodating the individual needs of job candidates, in accordance with the Accessibility for Ontarians with Disabilities Act (AODA), ALS Canada is committed to accommodating applicants with disabilities within our recruitment processes. Please contact the HR department at if you require an accommodation during the recruitment process.

ALS Canada is committed to being an equitable employer, we strongly encourage people from equity seeking groups to apply.